We aren’t out of the woods yet – but we can see daylight. Our visit to see the surgeon in Minnesota this past Thursday didn’t exactly go as we’d planned. The surgeon ended up being stuck in an operating room and not able to see us. Grace had a few x-rays and a test of … Continue reading Out of the woods
The four of us are together. We are working to enact Graham’s “when Gracie is home plan”. Tonight that means watching the Odd Squad movie as a family. It feels like she’s home just in time. This morning on the way to school Graham told me that he didn’t want there to be any more … Continue reading Grace is home!
Today Grace was transferred off of the PICU to a general floor. While she no longer requires the care of the PICU staff it should be a good thing to celebrate but it was more of an upside down, crazy train commotion than it really seemed that it needed to be. We have found ourselves … Continue reading and some cookies too!
Well, we are all through with surgery and Grace is as snug in a hospital bed as you can be in a hospital bed with tubes hanging out of you and poking into you. Kevin and I have had pizza – and although we haven’t done much today we are pretty tired. Even though … Continue reading Mitrofanoff Surgery day