Epilepsy Aware

November is Epilepsy Awareness month.  Our family lives with epilepsy, but I don’t think about it very much if that makes sense.  Earlier this week I had the opportunity to attend (from our house) a presentation Roxanne Cogil with the Epilepsy Foundation gave on seizure recognition and how to help if you see someone having … Continue reading Epilepsy Aware

Crying Days

Grace was discharged from speech therapy today for reasons that I don’t think are fair. It was disheartening, to say the least. We handled our disappointment I think pretty well and left on positive terms – but I cried. I wanted to just sit down and cry when we left and told Kevin – “I … Continue reading Crying Days

Not Great

This is Grace’s communication book from school. She’s had a lot of “not great” days this year. I’m glad the school tells us, but it’s hard to see. First, it makes me sad. I want her to do well. I want her to pay attention, learn, be part of the action. I want her to … Continue reading Not Great