Today Grace had surgery to lift her eyelids. They’ve been drooping, the right more than the left. Her brain and the muscles in her eyelids just weren’t working together. We were supposed to have the surgery done this summer, but if you’ve been reading along you know that this summer didn’t exactly go the way … Continue reading A black eye and bloody tears- October 26, 2016
I was discouraged this morning as I drove through the rain to get to the hospital. It was gray and gloomy and that’s how I felt. This is overwhelming. I asked myself how we are really supposed to do all of this – work , be with Grace, represent Grace, be with Graham, help each … Continue reading Rain Rain Go Away
Has Grace had any surgeries? We are asked anytime we are updating records or seeing a new provider. She’s had a GI Tube in 2006 and a Nissen Fundoplication in 2007. She’s had a Corpus Callosotomy in 2010 where the corpus callosum was removed between the halves of her brain…this is usually where jaws drop … Continue reading Has Grace had any surgeries?