This week started out to be the first regularly scheduled week we’ve had in some time; Monday morning it quickly changed. Shortly before taking Grace to her morning therapies and then school she was showing signs of discomfort and then had a tonic clonic seizure. We gave her some diazepam (valium) to stop the seizure … Continue reading To port, or not to port
The four of us are together. We are working to enact Graham’s “when Gracie is home plan”. Tonight that means watching the Odd Squad movie as a family. It feels like she’s home just in time. This morning on the way to school Graham told me that he didn’t want there to be any more … Continue reading Grace is home!
Last week Child Life sat with Graham and while using a special doll with a port they helped explain Grace’s port surgery. Graham was able to push medicine (water) in through the port and then drawn back blood (it turned red). He’s talked about it a few times since then but the best part was … Continue reading Duck