A girl in pink sits across the living room from me. She’s got a big bucket of toys next to her. She’ll play with a toy for a few minutes, throw it to the side, or it will become out of reach as she plays, and she will return to the bucket for another toy. … Continue reading Quarantine Update – We are still here
Grace turns thirteen tomorrow. 13. Thirteen is supposed to be the start of teenager-dom. It’s supposed to be about navigating friendships, big emotions, limits, learning, taking steps toward independence. We should be a year away from teaching her to drive. For us though 13 will be very much like 12, 11, 10 and the years … Continue reading Grace turns thirteen tomorrow. 13.
Around Christmas time Kevin and I decided that we were going to take Grace and Graham to Disney World. It was pricey, it was intimidating, we were experiencing much unrest about the world, but it was time for us to do something fun. We quietly planned, telling only a few people initially. In some ways, it felt … Continue reading So this happened…
Today Grace had surgery to lift her eyelids. They’ve been drooping, the right more than the left. Her brain and the muscles in her eyelids just weren’t working together. We were supposed to have the surgery done this summer, but if you’ve been reading along you know that this summer didn’t exactly go the way … Continue reading A black eye and bloody tears- October 26, 2016
Grace will be undergoing a surgery to have a Mitrofanoff that will create a tunnel using her appendix between the bladder and outside of her abdomen. This will allow for us to easily empty her bladder with a catheter making her personal cares easier as she continues to grow and will help prevent UTIs which … Continue reading A little bacteria goes along ways