12

Grace turned 12 last weekend. Twelve. I can’t fathom how time has moved both that fast and that slow. Grace’s birthday usually finds me a little down. It is hard to celebrate what is while also very aware of what could have been. One of her presents was a very large Sofia the First balloon. … Continue reading 12

Summer

I am looking forward to summer. I want lemonade, fresh fruit, berry crisp, miniature golfing, and the feeling of the sun and heat soaking in. I want less responsibility. Fewer things to juggle. A break. To get to summer we’ve had to get past the last few weeks. Grace had surgery last week in Minnesota … Continue reading Summer

Tambourine Girl

Today was a big day for Grace. She is no longer connected to a pulse ox, ECG, and drum roll please…the NG-tube was removed! So many fewer tubes and wires to contend with all at different angles are a welcome change. She has also started a slow feed of Pedialyte (just 15ml/per hour) and we … Continue reading Tambourine Girl