When people ask me how Grace is doing a lot of times I respond by talking about how grateful I am that she’s been out of the hospital this summer. Facebook has been reminding me everyday lately about Grace’s surgery, a trip to the ICU, and all the complications of last summer. I have to … Continue reading Chasing the Noise
Today Grace was transferred off of the PICU to a general floor. While she no longer requires the care of the PICU staff it should be a good thing to celebrate but it was more of an upside down, crazy train commotion than it really seemed that it needed to be. We have found ourselves … Continue reading and some cookies too!
Grace and I have had a quiet day in ICU. Technically she wouldn’t have to be in the ICU anymore – but because they know her, and are looking at continuity of care, they are keeping her here rather than moving her to a floor. I am very grateful for this. I would hate to … Continue reading Pixie Dust
Grace is still in the ICU. The ICU has been an interesting place to be. I’m grateful that this is the first time that Grace has needed this level of care. She is constantly being monitored. I feel like we are relearning things about her as we work to get her back to where she … Continue reading Ridin` the range once more – ICU Update
Grace has in the ICU tonight. I was with her today during her monthly infusion that she practically slept through. Her abdomen has been a bit distended but that was attributed to some gas that we have been able to mitigate through venting of her G-tube and with gas drops but today it just seemed … Continue reading Back in the Saddle Again – ICU