National Sibling day was actually April 10th. I’m a little behind. I realized that day I didn’t have any fun old pictures of me with my siblings – I need to fix that next time I’m in Jesup. But I did have some pictures of Grace and Graham and so I put one out on … Continue reading National Sibling Day
While Graham and Kevin ran to the library and then to get Grace birthday cupcakes today I fed Grace. As I fed her I turned on Gilmore Girls- the pilot episode. When I was home on maternity leave with Grace – no knowledge of what was to come- only dreams of how it would be … Continue reading Where you lead I will follow – 11
I hesitate to even write this. I hesitate to even begin. I’m not one to post on politics. I choose more often to focus on the less controversial topics that we deal with as a special needs family. My hesitation is also based on me finding myself trying really hard not to judge based on … Continue reading Pre-existing Condition
This week started out to be the first regularly scheduled week we’ve had in some time; Monday morning it quickly changed. Shortly before taking Grace to her morning therapies and then school she was showing signs of discomfort and then had a tonic clonic seizure. We gave her some diazepam (valium) to stop the seizure … Continue reading To port, or not to port
We are home. We made it home last night. Dr. Monkeyology has returned to his spot in Grace’s room. He has once again upheld his responsibility of protecting her and serving as her comfort item during a tough time. When my dad told Graham that we were headed home he insisted it was time for … Continue reading It’s been a pleasure to know you but I hope to never see you again.