a pink helmet production

When Grace was two and we were much newer at special needs parenting we grappled with this feeling of always being vulnerable simply because Grace was Grace. We could be having a great day but find ourselves quickly feeling miserable, or angry, or scared, or frustrated by big or little things. It could be the … Continue reading a pink helmet production

Mr. Rogers

I’m dreading the next six weeks with Grace. There are four specialty appointments. One of them with someone brand new. One of them may ask us to consider signing Grace up for surgery. There’s school conferences, which were awkward in the fall. There’s an IEP meeting. There’s a new communication device to trial. I’m in … Continue reading Mr. Rogers

Eight

When I saw the pediatrician a few weeks ago with Graham he commented that Grace’s birthday was coming up.  “She’s going to be 8” I said, “can you believe it?”  I went on to say “It feels like so long ago that this all started.”  He replied, “But sometimes it feels like not so long … Continue reading Eight

Gracie Walk

“Gracie walk” he said as he took her hand- and they took a few steps together before she started to trip.  Graham did this.  Graham, our not quite two, continually amazing us, little boy.  I just loved them both so much in that brief moment…it was kind of a normal moment (if you don’t think … Continue reading Gracie Walk