Grace’s epileptologist, Dr. Doescher is moving on to new opportunities where he will no longer be providing patient care. While we are happy for him he will be greatly missed. He has played a crucial role in not only Grace’s life but also ours. We have both written a blog post to help ourselves process … Continue reading We can’t tell Grace’s story without you
Has Grace had any surgeries? We are asked anytime we are updating records or seeing a new provider. She’s had a GI Tube in 2006 and a Nissen Fundoplication in 2007. She’s had a Corpus Callosotomy in 2010 where the corpus callosum was removed between the halves of her brain…this is usually where jaws drop … Continue reading Has Grace had any surgeries?
Grace has a schedule: 6:15 – Morning meds 6:45 – Out of bed (allow time to wake up before next step) 7:15 – Cath, get dressed, G-tube feeding 10:00 – Water 11:30 – Cath Noon – Meds and G-tube feeding 2:30 – Water 3:30 – Cath 4:00 – G-tube feeding 5:00 – Meds and water … Continue reading The Rhythm of Grace