2018 Year in Review

Well, we are into 2019 and we haven’t yet written our summary of 2018. December flew by in a blur of Graham’s birthday, taekwondo, work, cub scouts, church, holidays and school. Our Christmas tree is still up for a few more days so I figure I’m good to write this. 2018 was the year: We … Continue reading 2018 Year in Review

Tambourine Girl

Today was a big day for Grace. She is no longer connected to a pulse ox, ECG, and drum roll please…the NG-tube was removed! So many fewer tubes and wires to contend with all at different angles are a welcome change. She has also started a slow feed of Pedialyte (just 15ml/per hour) and we … Continue reading Tambourine Girl

Grace at Sea

Grace and I just returned from an overnight trip to the Epilepsy Unit at Children’s Hospital in St. Paul.  On Monday she started twitching on her right side.  Her leg, arm, mouth, and eye were involved.  Without knowing what was going on – this was great cause for concern.  We ended up in the ER.  … Continue reading Grace at Sea