Archives for posts with tag: Disney

FullSizeRenderI was having trouble starting this Christmas letter until I got on my phone and scrolled back through the pictures I’ve taken over the last year. I’ve taken so many pictures – a full year of little moments, big things, memories that make me laugh, and memories that make me tear up.

Graham’s love of sunglasses and selfies is in there. There are pictures of donuts and legos. There are pictures of his last days at Childserve’s Daycare where he was loved well for over five years. There are pictures of his first day of kindergarten.   There are pictures of him at taekwondo. I even have a screenshot of directions for tying a taekwondo belt.

Grace is also a fan of the selfie – but most times I’m in the picture with her to help her take the shot. There are so many pictures of Grace dancing. There are pictures of her swinging. Pictures in waiting rooms and doctor’s offices abound. There’s her first day of 5th-grade picture. I had her in a shirt that in pink shiny lettering said “This girl can” for that day. There are also a few shots of her in her “Nevertheless She Persisted” shirt. Finally, there are lots of shots of baseball. Her last game she played with either Kevin or I holding an umbrella over her head because it was raining – but she played anyway.

Kevin appears in pictures of baking with Graham, snuggling with either kid, flying kites at Johnston’s Kite Festival, sitting behind the steering wheel of the van, and across the table from me when we have had a chance to go to dinner just the two of us.

I’m usually paired with Grace or Graham in the pictures of me. There are a few from work. There are a few early morning shots that Graham took – that even though I don’t like I just can’t bring myself to delete.

What strikes me most in reviewing the pictures is that we really did life this year as a family. We went to Disneyworld-which was Amazing! (I have a crazy number of pictures from those days.) We also accomplished many of our summer bucket list items. We saw fireworks at the Golden Castle (that’s what Graham calls the state capitol building) for the Fourth of July. We had lemonade at Farmer’s Day. We went miniature golfing. We went to the Pappajohn Sculpture Park. We went to the zoo. We were at the State Fair. We went to family camp. We went on a vacation to Duluth Minnesota. We went to Reiman Gardens. We swung in the backyard and had one officially documented picnic. We stayed in a hotel or two. This fall we were at Living History Farms, we had family pictures taken, and we went to see Disney on Ice.

What all that tells me is that we are finding some balance between feeling limited and just going for it. We are keeping Grace both in the world and in activities that allow her to excel that are more specialized. I can see that Graham had 1:1 time with me – and I know that he did with Kevin. The two of them take Saturday morning trips to the Farmer’s Market that are well documented on Kevin’s phone.

I can also see our kids grow, which is ultimately their job.

We plan to spend the holiday season celebrating together – with a few movies, some cousins, some legos, and Disney princess dolls thrown in. I’m sure I’ll take lots of pictures.

Thanks to those of you who check in on us. Those of you who laugh and cry with us. We appreciate you.

From all of us to you – Merry Christmas!

Joy

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Around Christmas time Kevin and I decided that we were going to take Grace and Graham to Disney World. It was pricey, it was intimidating, we were experiencing much unrest about the world, but it was time for us to do something fun. We quietly planned, telling only a few people initially. In some ways, it felt irresponsible. We should have been saving those vacation hours because you never know with Grace. We should have been saving the money because you never know with politics. But truth be told we always feel like we play it safe. Our family deserved a chance to try something different.

Graham was ecstatic. Grace quietly listened to our planning knowing long before her brother that this was in the works. Oh my goodness, we planned. Kevin searched websites and mastered the Disney app. I bought a book and searched Pinterest. We borrowed suitcases from my parents.   Kevin reached out to Kamp-Rite the folks who make the tent Grace sleeps in when we travel with questions about a new compact version they have that folds up smaller. Someone there took a minute to click on the link to our blog in Kevin’s email signature. Low and behold they sent us a traveling tent as a gift. Their messages conveyed delight for our family. Their only request was that we send them a pic of us at Disney World when we returned. We were humbled and grateful and in the end sent them several pictures of our trip.

I could barely sleep the night before our trip. I was so anxious. Could we do this? Would it be fun? Could we meet both Grace and Graham’s needs?  We’d be hours away from the team that holds Grace together.

We flew out of Des Moines on a Thursday afternoon and arrived on a bus at our Disney Resort a little after 8 pm that night. We found our room, got food, and watched fireworks before we went to bed that night.

We couldn’t get going as fast as we’d wanted to our first full day there. We finally made it to the park but we were not aware of the multiple steps of security and of course got in line behind a family that just couldn’t make their tickets on their phone work. We made it to our scheduled first stop – a meet the princess with Elena and Cinderella barely on time. As we made it into the room with the two princesses we found ourselves next in line and Grace having a seizure. Kevin was so calm about it asking the family behind us to go ahead. The Disney workers were a bit taken aback by this but quickly recovered when I explained that we just wanted a little more time for Grace to get through her seizure. At some point, the doors were closed and our family – just the four of us- were in a room all by ourselves with the princesses, photographers, and their helpers. In no way did I feel rushed.  We were invited to learn magic and sing along with the music in Avalor and offered carriage rides with Cinderella and the Prince. Cinderella talked to Graham prince lessons but he wasn’t so sure about that.   There were pictures taken with each princess and pictures of all of us together.   As we exited through the Cinderella/Elena gift shop my eyes filled with tears and I wasn’t so sure that I wasn’t just going to sit down and cry. Those minutes, that interaction, somehow they had made all the worry, all the planning, worth it.   We could have gone home then and I would have raved about the experience. But I’m glad we didn’t.

Over the next four days, we did our best to take advantage of all the things we thought our kids would like. Beauty and the Beast, Finding Nemo, the Little Mermaid, Frozen, Jake the Pirate, Snow White, Sofia the First, Winnie the Pooh, Peter Pan, race cars, a safari, and the Swiss Family Robinson tree house. We visited Epcot, the Magic Kingdom, Animal Kingdom, and Hollywood Studios. Graham showed his first interest in Star Wars watching Chewbacca, Storm Troopers, and Darth Vader on stage. We had character dinners and met several of the princesses.   We watched Graham dance with Pluto. We watched Grace light up from pixie dust as we approached Tinkerbell and saw her longingly look towards Rapunzel’s hair. We all rode the Dumbo ride and It’s a Small World. We swam in the pool at the resort.  There was a single duck who frequently joined us in the pool. We rode buses, the monorail, and boats. We saw fireworks sitting on a boat out in the water.

Graham declared on a daily basis “wouldn’t in be fun if we lived at Disney?” He commonly expressed that things were awesome or amazing. Grace’s communication device didn’t work too well in the bright Florida sun, but we caught her smiling more than she normally does and had to watch her hands carefully as she encountered characters in beautiful dresses.

As with all great vacations, there have to be things that don’t go quite the way you expect. We had several mishaps where the monorail stopped working temporarily. We started joking that there is regular time, Grace time, and Disney time. We were amazed by how long we could be eating a meal waiting for the various characters to stop by. Bedtime was pretty late a few nights.

I worried about the disability/accessibility aspect of our trip. I shouldn’t have worried Disney was very accommodating. Apart from having to wait one time for the next boat, they were always ready for a wheelchair. We met other families like ours and had a few minutes to talk about wheelchairs and meds as we waited for the monorail to get fixed. There were “normal” families who went out of their way to approach Grace, help flag down a bus driver, or hold Graham’s Winnie the Pooh when it became apparent that our hands were full.   The one thing I did struggle with was the looks we sometimes got from families as we were loaded onto boats, buses, and monorails first. Yes, we were first, but we were always last getting off. I wondered to myself if they noticed that.

We’ve been home a few days now. We are back in the regular world. I miss the weather in Florida. I miss the attention to detail. I miss feeling like my primary responsibility is to just hang out with my family and experience magic.

But the thing is now I know the magic exists. I know that our family can thrive in a situation that is just about fun. The Disney magic gave us some confidence and some beautiful memories. Kevin has already begun planning our next vacation.

Joy