When people ask me about how Grace is doing with quarantine and how we are coping I’ve found myself explaining to them my desire to put Grace in a bubble and just leave her there. In my mind this bubble would keep her safe from any physical or emotional harm that would come her way. … Continue reading The Bubble
In the school system our kids are in you go to one school for grades K-5, another for grades 6-7, another for 8-9, and then the last for grades 10-12. My one school building that held grades K-12 childhood in no way prepares me to even know how to approach that much change for Grace … Continue reading Are we overthinking this?
Today Grace had surgery to lift her eyelids. They’ve been drooping, the right more than the left. Her brain and the muscles in her eyelids just weren’t working together. We were supposed to have the surgery done this summer, but if you’ve been reading along you know that this summer didn’t exactly go the way … Continue reading A black eye and bloody tears- October 26, 2016
Yesterday was supposed to be a very central day between the past and the future in our day-to-day lives. Grace’s Mitrofanoff surgery was the end goal, the prize if you will at the end of two years of working to prevent all to frequent urinary tract infections (UTI). In order to proceed with the surgery … Continue reading Compromise