Grace and I have been reading books tonight – a wide variety of Dr. Seuss, Clifford, princess books- all with bright colors to keep her attention. It’s making me think about her going back to school next week. Yikes! I haven’t bought a single supply. I haven’t worked on a doctor’s order, resume, health update, … Continue reading Slowly but surely…..
Today Grace was transferred off of the PICU to a general floor. While she no longer requires the care of the PICU staff it should be a good thing to celebrate but it was more of an upside down, crazy train commotion than it really seemed that it needed to be. We have found ourselves … Continue reading and some cookies too!
Grace and I have had a quiet day in ICU. Technically she wouldn’t have to be in the ICU anymore – but because they know her, and are looking at continuity of care, they are keeping her here rather than moving her to a floor. I am very grateful for this. I would hate to … Continue reading Pixie Dust
Today was a big day for Grace. She is no longer connected to a pulse ox, ECG, and drum roll please…the NG-tube was removed! So many fewer tubes and wires to contend with all at different angles are a welcome change. She has also started a slow feed of Pedialyte (just 15ml/per hour) and we … Continue reading Tambourine Girl
I was discouraged this morning as I drove through the rain to get to the hospital. It was gray and gloomy and that’s how I felt. This is overwhelming. I asked myself how we are really supposed to do all of this – work , be with Grace, represent Grace, be with Graham, help each … Continue reading Rain Rain Go Away