“Though she be but little she is fierce.”
Fierce isn’t necessarily the first word I would use to describe Grace…but when Kevin saw the shirts he said we had to have them for Grace, Chloe, Jacque, and Jill. Grace is most definitely fierce in her love of dance.
But it’s not just dance – the more I thought about it, the more I realized it’s everything….she is fierce! I need to add the word to her description.
She has so many obstacles to overcome – and she does it everyday. She is working to communicate, working to walk, working to engage with others, working to learn, – and doing all of it with a brain that doesn’t work the way it should, a body that doesn’t do exactly what she wants when she wants, and seizures everyday just to keep things interesting. I truly believe she is winning friends and influencing people – in part due to this fierceness.
And while no longer as little as she once was – she’s still a little girl. Our little girl, who won’t grow up in the way it’s commonly defined.
I know she’s physically growing up and I worry about how big she’s getting constantly. I don’t want her to outgrow us – outgrow our ability to help her, care for her, provide her with the best experiences that we can. I have wished to be stronger and taller a lot lately!
Fierce isn’t a word I’d necessarily think to use to describe myself or Kevin either – but as we’ve lived the last few weeks of doctor’s appointments, medicine changes, school meetings, equipment not showing up, and our questioning of what other options we have to help her – we have had to be fierce. I hope to be fierce respectfully. I think some people understand that part of the fierce is love, part advocating, part seeker of answers, part voice of Grace, part a plea to continue to work with Grace and never ever give up on her.
As I watched her dance in her recital on Sunday – and watched our friends and family watch her dance I just knew that we could keep going. Sometimes you have to be reminded evidently.