There is a butterfly on the back of the hats they gave Grace to wear in the hospital – the butterfly signals a new beginning after brain surgery. Since we last wrote there have been ups and downs – but I sense the new beginning. Two weeks ago Grace was in the hospital, it was the third day after surgery – her eyes were swollen shut – and Kevin and I would cringe each time we looked at the incision on Grace’s head. Today Grace was in Sunday School. Tylenol is controlling the pain she has. She’ll walk holding onto our hands, but still prefers to stay pretty still. She’s having maybe four clusters of seizures a day – none of the big ones we were trying to get rid of! She smiles, makes noise, and giggles. She seems clearer somehow. She used to only giggle when having a seizure. As close as Kevin and I watch her now when she giggles…..it appears to be a giggle – and a giggle only!
There is more waiting to do as we continue this new start. We are waiting for the stitches to come out, for the activity restrictions to be lifted, for her to be walking about like before, to see how all of this will affect everything else…the diet, the medication, her learning, her communication.
We have been blessed by so many friends and family as we have moved through this process- we owe you a whole blog update just about that. Its awesome to have a new beginning – but it is because of our first start, and the people who have loved Grace and us that we were able to get to this new beginning.