Kevin and I have put things in motion for Grace to have brain surgery to remove 2/3 of her corpus callosum (WebMD has a good article on the corpus callosotomy). I have found myself explaining the procedure to friends and family a few times in the last few days. It all seems so strange that something that sounds so simple (as far as brain surgery goes) requires a full day’s work of a neurosurgeon, a special operating suite, and only the projected four days in the hospital after the surgery for recovery- and equally strange that Grace is going to be anywhere near that kind of environment.
Simple is the wrong word, but I don’t know what other word to use.
The hair gets to stay. When we talked to the neurosurgeon we figured that we would have to cut if not shave Grace’s head, but she gets to keep it all. The surgeon said she has beautiful hair and there was no need to cut it.
The surgery is scheduled for Feb. 4. I think Kevin and I are handling it pretty well. We both have it in the back of our minds though – all the time – and that is exhausting.
In the meantime we are trying to have “normal”. We took Grace to see her first movie last weekend – The Princess and the Frog. She watched the movie…moving a lot throughout…but she never went to sleep! Yesterday was her first day of private speech therapy. She has school. We see an ophthalmologist on Friday to investigate further if Grace is having trouble with depth perception. And we are back in Sunday School after the Christmas break. It’s an hour earlier now – and Grace isn’t a real go-getter first thing in the morning. She’d rather just snuggle and take it easy.
So, that’s where we are at.