We are now in the middle of week two of Grace’s Felbatol decrease, down to less than a third of her regular dose. We make one more drop next Tuesday for one week and then off of Felbatol. So far we have not seen any significant increase in seizures which is rather surprising. Once off … Continue reading Valley Girl Hair
We have moved Grace to a big girl bed, bunk beds fitted with a tent that Kevin designed in order to keep her safe. (It is seriously a masterpiece). She was too big for the crib – and too active (a great problem to have). The problem is, there is this small gap between … Continue reading Stuck in the crack
I admit, we are tired. The last nine days have brought 104.9 degree temperature, a shot of antibiotics, an ear infection, more antibiotics, an ER visit, a two night stay in the hospital, elevated liver enzymes, a discussion of a spinal tap to diagnose meningitis or encephalitis, lots of suctioning, an IV, labs, a trip … Continue reading A girl and her phone shall not be parted…..