Don’t jinx it

Grace is nearly the end of week two (Monday) on a new medication called Banzel.  The medication  was approved for sale in mid January and used to treat tonic seizures and Lennox Gasteau Syndrome (which Grace essentially has). We are on a four week titration to the full dosage (so half way there) and Grace’s … Continue reading Don’t jinx it

Ming Ming

I hope you’ll forgive me that this story isn’t directly about Grace – but it is about her toy choice for her third birthday….. For her birthday Kevin and I took Grace to Toys R Us to find a toy.  We showed her so many things – and the thing that she loved most was … Continue reading Ming Ming