We have continued Grace on the Vigabatrin, by now the plan was to have her at a dosage of 750mg twice a day, we are still at 250mg once a day. Grace does everything at her own pace so it’s not too big of a surprise that we are still at the original dosage.
The vigabatrin has brought new life to Grace, she is smiling on a regular basis and giggles at times (we have yet to figure out what exactly makes her giggle) she is also more active and more deliberate in her playing. However it has also brought more seizures that are longer but lighter in intensity. We have had to use Diastat (emergency seizure medication) more in the past month than we have in the last year.
So our delimia is at what cost in Grace’s development do we allow more seizures or compromise her development for better seizure control.