Archives for the month of: September, 2007

I’ve been in LaCrosse this week…. man I love this place.

Kevin has been home with Grace, and is just phenomenal with her. A call came in today with the opportunity for him to go and tell our story in order to help others. He jumped right in the car so that he could help. I love him. Grace is a lucky girl


In church on Sunday Grace and I had to sit in the very, very, back. She is again making the pbbbttthttt noise and the spit just flies! Bob, the janitor at church walked by and told me that Grace looked healthy to him, but he hoped that soon she’d be running around and raising a ruckus — He gets it!

Our life seems to have settled into a sort of routine…. the ketogenic diet is very strict – tonight we went from store to store to store to find ketogenic friendly diaper wipes. My husband, bless his heart, ended up just coming home and ordering us 5 cases on-line. How crazy is that?

Having a nurse at the house is so wonderfully refreshing. We are no longer getting calls that scare us at work….. Hoover has found that he can beg and get extra treats, and both Megan and Lisa seem to love Grace very much. And though it is odd to have a medical chart in the kitchen, and cumbersome to have a doctor’s order for the day to day changes that arise, there is a certain peace.


Home is where the heart is…… I’m not sure that’s true today. My heart has been in Des Moines and St. Paul the last two weeks… split between the blonde-haired blue-eyed man that I love and the little blonde-haired blue-eyed girl we had together. How can home be in two places?

Home is where your family is. Where the basset hound barks at the mailman, where the next store neighbor grins as she works happily in her yard, where your little girl smiles at ceiling fans, where your husband doesn’t clean off the stove top after he cooks, and makes you laugh with gusto because of something funny he said.

If the last two weeks have taught me nothing else….. it has taught me that sometimes there isn’t a whole lot of difference between what is simple and what is complex.

1/16th of a teaspoon of salt allowed us to come home……. 1/16th of a teaspoon of salt assures that Grace’s body will remain healthy as it learns to take energy from fat…… 1/16th of a teaspoon of salt means that one of us has to stay up later in order to make sure that Grace gets that salt….. 1/16th of a teaspoon of salt led to the purchase of new measuring spoons…. 1/16th of a teaspoon of salt may allow our daughter to smile more, laugh, learn….. 1/16th of a teaspoon of salt…… it’s unreal to me even now as I sit here knowing that most likely I am failing miserably at getting my point across….. but I ask for your patience and want you to know that it makes sense to me!