We are in St. Paul right now we came back for a followup appointment. We have some good news! Grace’s EEG is showing more organization in the brain waves, in November she was showing just a little organization in the waves. The nigth terrors she si having are not seizures as we feared. We are going to continue on with the Felbetol and push it a little higher, we will closely monitor her levels in the coming month. We will come back to St. Paul for another followup in February, if we see continued improvement we will keep on going, if we don’t we will look towards another treatment either a drug therapy or the ketogenic diet.
We are on the Pediatric Epilepsy Unit at Children’s visiting Grant and his mom Jannelle who to our church and they are also the ones that gave Hoover to us. We should be taking off shortly for the drive home.