Archives for the month of: December, 2006

As you can see from the previous post, Grace went to daycare. We got a call last Thursday the 22nd and were told that Grace was one of 50 people approved for funding through Polk County to help out with Day Care for Exceptional Children’s cost! This was a huge early Christmas present! When I say huge I mean really really really big and overwhelming. We were told that we would not get funding until 2008 if we were lucky do to some squandering of funds and political bureaucracy, imagine that. Grace will go back for two days this coming week and we will do that for a couple weeks and then see where we will go from there.

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Well, we are all feeling better. Grace made it through her first Christmas. It was actually pretty quiet on Christmas day… we went to the local Chinese buffet for Christmas dinner…. it was packed! Grace fell asleep while we were there so obviously it wasn’t too exciting — but it was nice just to be the three of us. (four counting Hoover— but he of course didn’t go to the restaurant with us).

Grace also made it through her first day of Daycare for Exceptional Children. I was perhaps more overwelmed then she at the prospect of this, but her teachers loved her… and she was kept very busy. We are hoping this will help her sleep tonight, she has been waking up at 4 ready to go…. ugh!

On her report card it says she spent 1/2 hour “hanging out with friends” — how cool is that she no longer has just us…. she has friends!

Grace is still in the hospital, they tried some formula last night and she began throwing up again around 4 am. I got sick last night as I was gathering things to take back to the hospital — and continue to struggle.

Kevin is holding down the fort for Grace and myself. And he is doing really well at it. Please keep him in your prayers… for strength, patience — and health!

PS — If anyone wants to go to Blank and give him an hour off — I’m sure he’d appreciate it.

Grace was in the ER again yesterday morning…. she began throwing up late Saturday afternoon and was keeping nothing down. They admitted her to the hospital yesterday afternoon to make sure they could get some fluids in her and so they could give her medications by IV until we figure out what is going on. This is somewhat discouraging…. two ER visits in 8 days… but I’d much prefer she be there, because there is nothing scarier than watching her turn purple trying to vomit….. what a cheerful message for so early in the morning! Anyhow Kevin is with her now and I am rounding up some things to be able to get back to them. Think good thoughts!

It’s been such a mixed bag the last few days….

Grace is producing steroids as she should… she is free and so are we,
but — the thyroid came back abnormal, this is responsible for growth and will require another blood test on Thursday.

A trip to the ER for a “normal” baby problem leads to further tests, there is the possibility that Grace could have “reflux of the kidneys”…

we are stymied by having to make a decision about daycare… it was scary the first time to make a decision, but now I am honestly petrified about where we should put her – how we will pay for “specialized” care – and if anyone but my dad is “good” enough to take care of my baby.

But… we can take her to see Santa — and she is able to put weight on her feet longer, and Kevin called me this morning all excited because she was giving him little half smiles and making great noises. I wanted to come home. That’s enough of a good thing for today—- we can keep going tomorrow.