Home Sweet Home

We have been home for almost a week now. Grace’s medications have been changed slightly as the seizures continue, she still has not had more than 2 clusters of seizures a day, a couple of days none and some days one. We are thinking that ultimately we will end up having to give the Ketogenic … Continue reading Home Sweet Home

Day 9 in St. Paul

Grace slept pretty well last night this is the first night since mid August that she has not been fed overnight. She woke up around 4am and took a couple ounces. Her blood cultures are still not quite right, they want to make sure any infection is knocked out before discharging her. Dr. Strafford who … Continue reading Day 9 in St. Paul