Grace turned 15 last week! We celebrated with cupcakes, presents (mostly bath toys and dolls), family games of UNO, and lots of singing of Happy Birthday. It feels as though her 14th year was somehow lost – lost to COVID-19. Lost to a multitude of vulnerabilities listed on the CDC website. She missed so much … Continue reading Fifteen
Well, it’s been a year. A year that’s seemed to fly by and crawl all at the same time. The impact of the COVID-19 pandemic on our life is impossible to ignore. We were off to a pretty great start at the beginning; Graham played basketball and tried fencing. Grace was dancing and turned 14. … Continue reading The Family Christmas Letter
November is Epilepsy Awareness month. Our family lives with epilepsy, but I don’t think about it very much if that makes sense. Earlier this week I had the opportunity to attend (from our house) a presentation Roxanne Cogil with the Epilepsy Foundation gave on seizure recognition and how to help if you see someone having … Continue reading Epilepsy Aware
I fell in February and hurt my left knee. I waited about 10 days before I called the doctor hoping it would recover on its own. When that didn’t work, I went in to see the doctor. She could see the swelling, but an x-ray showed everything looked good. Next step was an MRI. I … Continue reading Brand New
A few weeks ago, Kevin and I sat with Grace’s team and did a new page in her IEP (Individual Education Plan). We talked through what school would look like for her if she was 100% online, if she was hybrid, and what it looks like in the middle of a pandemic for Grace to … Continue reading Educating Gracie
