November is Epilepsy Awareness month. Our family lives with epilepsy, but I don’t think about it very much if that makes sense. Earlier this week I had the opportunity to attend (from our house) a presentation Roxanne Cogil with the Epilepsy Foundation gave on seizure recognition and how to help if you see someone having … Continue reading Epilepsy Aware
I fell in February and hurt my left knee. I waited about 10 days before I called the doctor hoping it would recover on its own. When that didn’t work, I went in to see the doctor. She could see the swelling, but an x-ray showed everything looked good. Next step was an MRI. I … Continue reading Brand New
A few weeks ago, Kevin and I sat with Grace’s team and did a new page in her IEP (Individual Education Plan). We talked through what school would look like for her if she was 100% online, if she was hybrid, and what it looks like in the middle of a pandemic for Grace to … Continue reading Educating Gracie
When people ask me about how Grace is doing with quarantine and how we are coping I’ve found myself explaining to them my desire to put Grace in a bubble and just leave her there. In my mind this bubble would keep her safe from any physical or emotional harm that would come her way. … Continue reading The Bubble
A girl in pink sits across the living room from me. She’s got a big bucket of toys next to her. She’ll play with a toy for a few minutes, throw it to the side, or it will become out of reach as she plays, and she will return to the bucket for another toy. … Continue reading Quarantine Update – We are still here
